Of course no one likes to think about feeding tubes.  And, no one thinks they will need a feeding tube.  However, if you are in an accident and are seriously injured you may become so debilitated that you cannot swallow.  If you are elderly and suffer from dementia you may become so seriously debilitated that you cannot swallow.  That’s when the doctors ask you or your family to make a decision.

The issue then is how you want to balance extending life with quality of life.  That’s a decision you should make after careful thought, after talking to your family and after becoming fully informed.

One common form of feeding tube used for long-term care is the PEG tube. PEG stands for percutaneous endoscopic gastrostomy tube. The surgeon cuts a hole in your abdomen and inserts the tube directly into your stomach.

A study published in April, 2009 indicates that there is little evidence feeding tubes benefit patients with advanced dementia. The study author says that tube feedings in the elderly with dementia may not even prolong life and that physical restraints were used for 71% of the patients studied.

In our nursing home neglect practice in Daytona Beach we often see elderly patients restrained because they forcibly take out their feeding tubes. This usually happens because the patient is too confused to understand what the feeding tube is.

The use of feeding tubes can be extremely controversial without clear direction from the patient.  You may remember the case of the unfortunate Florida woman who had been on a feeding tube for a long time.  Her husband directed the doctors to remove the feeding tube but politicians and the media intervened creating what could only be described as a media circus that was emotionally wrenching for everybody involved.

Therefore, we recommend that you sign a living will making it clear whether you want a feeding tube.  We will have more on feeding tubes and living wills in a later posting.

For example nursing home residents who have had strokes or some other extremely debilitating medical condition sometimes cannot swallow. The resident and family must then decide whether to use a feeding tube. The feeding tube provides nutrition and hydration and extends life for people who cannot take in their own nutrition and hydration by swallowing.

Feeding tubes, however, are not without difficulties. The most common type of feeding tube utilized long-term is the percutaneous endoscopic gastrostomy tube or PEG tube. The Peg tube is surgically inserted through the abdomen into the stomach. The surgeon uses a camera inserted through the mouth down into the stomach to perform the surgery. The feeding tube rests in the stomach and exits through the skin. The nurses must carefully clean the surgical site for the remainder of the resident’s life in order to avoid infection.

The tube, of course, interferes with a resident’s mobility. While it provides sufficient nutrition and hydration for the resident to stay alive, it also has side effects and does not do as good a job providing nutrition as normal chewing and swallowing. Side effects include bloating and diarrhea. People on PEG tubes are at risk for poor nutrition and digestive problems. Because of the potential for poor nutrition and decreased mobility, they are also a risk for bedsores. For more information about this feeding tube, see the entry in Wikipedia through this link. http://en.wikipedia.org/wiki/Feeding_tube.

Any decisions about health care in a nursing home or hospital require balancing the goal of extending life with the goal of living a quality life. We recommend that family members talk about end-of-life planning in a very frank and nonjudgmental way well before decisions must be made in a nursing home or hospital. The best way to do this is to consider a thorough living will and designation of health care surrogate as allowed by Florida law.